PARENT GROUP

Parents of children born with craniofacial anomalies are understandably very perturbed and experience feelings of intense anxiety.

Despite the reassurances given by the members of the team that will undertake the treatment of their child, they usually feel that they need more information and support which can only be given to them by other people who have gone through the same ordeal, that is, from parents of children with similar problems, or from adults with the same condition whose treatment has been completed.

This is exactly the reason for which parent groups exist in many countries. The purpose of such parent teams is to provide support to each other, to new parents, to remain informed on any new developments in the field of craniofacial anomalies, and, as a group to be able to raise claims for benefits to which they are entitled from state organizations.

Parent groups are present at meetings related to clefts and craniofacial anomalies in which special sessions are held for them, and they hold meetings of their own for social and fundraising purposes.

In Greece such a team has been formed and continues to grow rapidly. Its members, parents of children with clefts and other craniofacial anomalies and young adults whose treatment has been completed are willing to provide their help to anyone seeking it. The name of this group is “ Pan Hellenic Group Of Individuals With Clefts And Other Craniofacial Anomalies ORTHOMORPHY”. Their office is located in Halandri, Athens  (Roumelis 53, Halandri 15233. Tel +30 1 68.30.427 Contact person Mrs. Maria Kapetanaki-Milpani)